If you have a bleeding disorder, you probably already know you suffer in many of the same ways European royalty has. Queen Victoria was a carrier of hemophilia B, a condition she passed down to two of her daughters and one of her sons resulting in royal cases of hemophilia in Russia, Spain, and Germany.
But let’s be real, it doesn’t matter what your status in life is, bleeding disorders can be life altering for those who suffer from them. Bleeding disorders are a group of disorders which share the inability to form a proper blood clot.
- Excessive bleeding
- Frequent nose bleeds
- Prolonged heavy menstrual periods
- Bleeding joints
- Excessive bruising
Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. Some bleeding disorders, such as hemophilia, can be inherited or acquired. Others can occur from such conditions as anemia, cirrhosis of the liver, HIV, Leukemia, and vitamin K deficiency. They can also result from medications that thin the blood, including aspirin, heparin, warfarin, and clonidine.
You are not alone! If you suspect you may have a bleeding disorder, please discuss your symptoms with your Case Manager, who will help you find the answers you need. Knowledge is power! Knowing what you are suffering from helps you know what precautions you can take to keep you safe. You can also join an online group of fellow sufferers to help you connect with people and events in your community.
You are important! To us and to the people around you. The CDC recommends “Do the 5,” 5 basic things you can do to keep yourself safe if you suffer from a bleeding disorder.
Let’s spread awareness of these diseases. March is Bleeding Disorder Awareness Month. If you have a bleeding disorder, share with your friends what it’s like to live with your illness. Wear red (especially a red tie) this month! And support The Run Red events. They are all being held virtually this year, so everyone can participate without the fear of getting sick from COVID-19.